Abstract
We showed in our presentation that both the informed as well as the community consent are indispensable elements for the collection, processing, use and transferral of indigenous samples and data. At the same time we find that these elements must be adapted to specific local as well as regional cultural particularities in order to function as effective standards. Moreover, these two instruments are not sufficient, but must be supplemented by further instruments. One major one is an international control agency which should be organized based on the principle of the charitable trust.
| Original language | English |
|---|---|
| Journal | Journal International de Bioethique |
| Volume | 19 |
| Issue number | 3 |
| Pages (from-to) | 49-67 |
| Number of pages | 19 |
| ISSN | 1287-7352 |
| DOIs | |
| Publication status | Published - 09.2008 |
UN SDGs
This output contributes to the following UN Sustainable Development Goals (SDGs)
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SDG 3 Good Health and Well-being
Research areas and keywords
- Law
- Clinical trial
- Community consent
- Human experimentation
- Human groups
- Social Justice
- Humans
- Bioethics
- Freedom
- Informed Consent
- Research/standards
- Social Identification
- Interpersonal Relations
- Culture
ASJC Scopus Subject Areas
- Health Policy
- Health(social science)
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